Another trip to Liverpool with Louise we went to the Open Eye Gallery to see an exhibition by Tim Hetherington , who died in the Libyan civil war in 2011, He wasn’t just a photographer he clearly engaged with people like, by other favourite photographer Don McCullin . He depicted hard soldiers when they were sleeping like little boys . I felt very moved by the exhibition as he documented the boy soldiers with hardly any clothes , weapons or freedom of choice. The trauma they must have witnessed at such an early age.
We then went on the Mersey ferries , we were basking in the autumn sunshine one minute and then soaked with heavy rain . It was strange going on a tourist ferry as when I lived there it was just a passenger ferry , I remember going over for a party one evening and coming back with the first ferry with a heavy hangover as we joined he first shift workers going to the city from Seacombe .
It was a pleasant day but I was tired and when I arrived home I went to straight to bed for a well needed rest. The rest of the night I trawled through my blog to choose which days I was going to display for this event. As I went through the days I was amazed with what I have done over the last 96 days. I have been so active and travelled far and wide. I am so lucky to have spent time with so many people in so many places.
I have been to Croatia where the seed of the idea of 100 days was planted and celebrated with the lanterns over the sea with my family . Then we celebrated my sisters birthday and later my own. We did the 10k and raised over £2,600 for St Ann ‘s Hospice. Then I started the venture with my garden and had many nights with the fire and the garden lit with lanterns including Joes’s 21st. Travelled to London to celebrate Sam’s graduations and met Alice’s family , stayed with Helen, Mark and Betsey while visiting the Academy Summer show and Betsey’s performance.
We visited Pam’s pottery which was a treat, then traveled to the Cornbury festival to see Van Morrison for the weekend , celebrated my friend Chris 50th party and then a weekend in with my sister Ros going to Bognor to see my niece and her family. I then rushed back for the Tatton Show. The next weekend back down to the south coast again Brighton with Louise to the Mermaid festival and meeting Stuart from the US.
We then went meet Ali in Buxton with Ruth , followed by a weekend with the boys in Edale roaming around the hills. On returning I then joined my friends, Sam and Alice for a week in Cornwall. Back home for a week and visited Liverpool again with Ruth, and attended my appointments before setting off to France and Geneva with the boys. I concluded the travelling with Louise today but with a trip to the Isle of Harris with Ruth in a VW van to plan.
It’s amazing that I have done all this without speaking , partially eating and feeding my tube monster with all the aches and pains of MND. I think having plans to be active has made me motivated and kept my mood uplifted. Now that the crazy summer has gone now I must plan to fill my days for the autumn , it’s will not be so busy as my fatigue levels are increasing but I will still try and keep you entertained !!!
Living with MND 