A day alone enjoying my own company, touched up my painting for my sister and ended up repainting the whole thing ! emailed friends , visited optician and then had a hour struggling to swallow my saliva. When I paint I have to have one hand to be mouth to catch the saliva , how undignified this is.
I seem to get so tired so quickly ! This is a hard challenge for me to deal with as I was so active before MND. Luckily I have my sight and can still read, so sat in the garden and finished off one book and took up a Hemingway books and borrowed book of Rumi. Then a mate of my son called around to give me a book he brought for me to inspire my painting we had a chat about everything from relationships to ambitions. The time with him passed quickly, in the book was a card with a messag to me about his friendship with my son and in his own diplomatic way that he will be there for Sam when I die. The card made me cry with joy at how tactful, thoughtful and sensitive the youth can be, for a 22 yrs old taking his time to call on me and thinking about me in his busy busy life. That gesture went straight to my heart.
I then curled up with the books in the sun and rested to the sound of the waterfall and the birds,listening to the gwntle breeze rattle the wind chimes. I really was appreciating the day as the sun dropped. The light just before sunset is really s spectacular and makes me feel so alive in a relaxed sort of way. Everything seemed bright, warm and inviting, the colours are so intense.
I then spent the evening making cake for my friends birthday. I then sat down and fell asleep but woken by a flooding nosebleed which scared me a little as I was choking on the blood as was swallowing … Does this MND hold no reins ?
I went bed after I had calmed down with Karma at my feet, and pondered on the day and how kind, thoughtful and supportive people are. Everyday I have a struggle but I am so fortunate to have such good friends and family who are all rooting for me. So I turned over and went to sleep with a warm feeling in my heart and cramping body, I can’t believe how my body can be so overactive when I am so tired !!!