We decided last night to get up and about early … We failed but we did get up and about before midday and went explore the modern side of Annecy and the beautiful rivers which feed the lake. We then went for the boat ‘bus’ which took us around the lake . We stopped a couple of places of the way a place called Duingt where there was an enchanting 11th century castle on a causeway and Saviour a little village as we approached Annercy. The views were magnificent . We sat on a private beach and ordered drinks and sat in the sun chatting while looking out over the mountains and the cool blue lake.
We arrived back at Annecy about 7 pm exhausted and pains in my hips, feet and back, we rested and I had a hot bath and then we made our way to the old town to take in the night life. It was so hard seeing everyone eating the specialities of the area , cheese fondue and garlic sausage with Alsace beer and chatting with each other . I felt like a spectator to another world . The boys were great and just rolled as I wanted to get out of the eating places to look for a quiet cafe bar.
I guess the hardest thing about MND is those normal things , I reflect how I used to take this for granted only a couple of years ago. I then think , well I have had a good 50 years , with very little hardship in terms of illness and disability. I guess I am satisfied with the decision I made about having a stomach tube inserted as i would be dead now as I cannot sustain enough fluids to keep me alive. So every day I live is a bonus and I have take this perspective.
For anyone suffering from MND and is thinking about the big decision about having a tube and enteral feeding , I was so very against it but having made that decision I am able to be in France with my boys sharing precious moments and laying down some memories for them too . Yes, it was a very painful procedure and it takes a lot to overcome those heartbreak moments of adjusting to life without talking and eating, but on balance I am glad I have few more months. The next big decision I need to make which is round he corner if to accept ventilation from a machine as my gasping for air is becoming more and more frequent. That will another story though but for today I can still breath and I am grateful foe that.